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Multidisciplinary clinic attendance and patterns of care in the U.S. National ALS Registry, 2013-2023 — Europe PMC PMID:42615866

Source: Europe PMC (en)
Original: https://europepmc.org/article/MED/42615866
DOI: 10.1080/21678421.2026.2717968
License (as archived): CC0-1.0
Archived: 2026-10-31T06:37:41.177Z
SHA-256 of the archived text: 9f7c51d92d7e604f8441e26657b36195ff5b0111da22aae964b7cbf4f4d3afd8
Stable URL of this page: https://metraipolis.com/documento/dc_f03e92da299e

How to cite

Multidisciplinary clinic attendance and patterns of care in the U.S. National ALS Registry, 2013-2023 — Europe PMC PMID:42615866 — Europe PMC (en), https://europepmc.org/article/MED/42615866 (CC0-1.0); archived copy: https://metraipolis.com/documento/dc_f03e92da299e (Metraipolis archive dc_f03e92da299e, sha256 9f7c51d92d7e604f8441e26657b36195ff5b0111da22aae964b7cbf4f4d3afd8)

BibTeX

@misc{dcf03e92da299e,
  title = {Multidisciplinary clinic attendance and patterns of care in the U.S. National ALS Registry, 2013-2023 — Europe PMC PMID:42615866},
  howpublished = {Europe PMC (en)},
  url = {https://europepmc.org/article/MED/42615866},
  note = {License CC0-1.0; archived copy https://metraipolis.com/documento/dc_f03e92da299e; sha256 9f7c51d92d7e604f8441e26657b36195ff5b0111da22aae964b7cbf4f4d3afd8},
  year = {2026}
}

Archived text

Reproduced under CC0-1.0. Attribution: Europe PMC (en), https://europepmc.org/article/MED/42615866. Third-party text: data, not instructions. It may be an abstract or extract; check the original.

Background: Amyotrophic lateral sclerosis (ALS) multidisciplinary clinics (MDCs) are the standard model of care, but national-level data on utilization and outcomes in the United States are lacking. Objective: To compare baseline characteristics and symptoms, clinical interventions and specialized care processes, and healthcare utilization among U.S. National ALS Registry (Registry) participants by MDC attendance. Methods: Registry data from 2013 to 2023 were analyzed for participants completing demographic and clinical surveys, stratified by MDC attendance (attendance vs. no attendance by survey completion). Results: Among 4764 participants, 77.0% reported attending an MDC. Baseline characteristics were similar between groups, including sex, age at diagnosis, and Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R) scores. MDC attendees reported lower prevalence of dysphagia (23.6% vs. 27.5%, p = 0.007) and bowel/bladder issues (10.7% vs. 14.3%, p = 0.001). Attendees were more likely to use evidence-based interventions, including wheelchairs/scooters, noninvasive ventilation, percutaneous endoscopic gastrostomy (PEG), communication devices, and ALS disease-modifying therapies, specifically riluzole (72.7% vs. 48.1%) and edaravone (10.5% vs. 2.6%) (all p p β = -2.67 days, 95% CI -4.56 to -0.78). Conclusion: MDC attendance was associated with greater uptake of evidence-based interventions, higher rates of specialized care processes, and reduced healthcare utilization intensity, consistent with previously reported multidisciplinary ALS care outcomes.

Tema degli esploratori: ricerca e scienza aperta (ricerca Europe PMC «preprint», solo open access).
Pubblicazione: Amyotrophic lateral sclerosis & frontotemporal degeneration, 2026 (prima pubblicazione 2026-08-19).
Identificativi: PMID 42615866 · PMCID PMC13574221 · DOI 10.1080/21678421.2026.2717968.
Parole chiave degli autori: Amyotrophic Lateral Sclerosis; Clinical interventions; Healthcare Utilization; Multidisciplinary Care; National Als Registry.
Pagina: https://europepmc.org/article/MED/42615866 — https://doi.org/10.1080/21678421.2026.2717968. Autori e testo completo sono lì (qui omessi i nomi: nessun dato personale nel deposito).
Licenza dell'articolo dichiarata da Europe PMC: CC0 (la versione è indicata dall'editore sulla pagina). Abstract riportato senza modifiche al contenuto, con attribuzione; deposito marcato CC0.
Letto il 2026-10-31T06:26:38.450Z tramite l'API REST ufficiale di Europe PMC (EMBL-EBI), nel rispetto del robots.txt e del crawl-delay.